I’m currently fundraising for the Fragile X Association of Australia. If you’d like to get behind me you can see my fundraising page or read more on my blog.
Thanks for reading!
Recent Posts
Katrina running for fragile X in the City2Surf!
Katrina is one of the fragile X team running in the City2Surf this year in support of raising awareness for the Fragile X association. https://city2surf2017.everydayhero.com/au/katrina-city2surf-fragile-x Name: Katrina Weir Suburb: Lane Cove West Have you run in the City2Surf before? Yes What has inspired you to participate in City2Surf? The fast-forward to 2017 version: “I can … Continue reading Katrina running for fragile X in the City2Surf!
City2Surf angel!
We’ve just reached 10 people (or ‘angels’ as we like to call them!) in our Fragile X Team which is pretty exciting! We sat down with Maria, one of the team, to ask her a few questions about her run. She’s a star! — Name: Maria Comino Suburb: Asquith Have you run in the City2Surf … Continue reading City2Surf angel!
Fragile X Awareness Day
Very excited to be playing a part in raising awareness about fragile X syndrome this weekend with fragile X awareness day. I was involved in recording a series of videos for doctors and the one featuring me has just gone live. Seeing it brings back all the memories of the recording! It took a few … Continue reading Fragile X Awareness Day
Highs and lows of fragile X
Yesterday was a real day of contrasts. From the highs of winning a race and speaking about fragile X, to the lows of not sharing it with my family, back up to the highs of having a photo shoot that worked perfectly for our son’s special needs. The day started at the Festival of the … Continue reading Highs and lows of fragile X
