Katrina is one of the fragile X team running in the City2Surf this year in support of raising awareness for the Fragile X association. https://city2surf2017.everydayhero.com/au/katrina-city2surf-fragile-x Name: Katrina Weir Suburb: Lane Cove West Have you run in the City2Surf before? Yes What has inspired you to participate in City2Surf? The fast-forward to 2017 version: “I can … Continue reading Katrina running for fragile X in the City2Surf!
We’ve just reached 10 people (or ‘angels’ as we like to call them!) in our Fragile X Team which is pretty exciting! We sat down with Maria, one of the team, to ask her a few questions about her run. She’s a star! — Name: Maria Comino Suburb: Asquith Have you run in the City2Surf … Continue reading City2Surf angel!
Very excited to be playing a part in raising awareness about fragile X syndrome this weekend with fragile X awareness day. I was involved in recording a series of videos for doctors and the one featuring me has just gone live. Seeing it brings back all the memories of the recording! It took a few … Continue reading Fragile X Awareness Day
Yesterday was a real day of contrasts. From the highs of winning a race and speaking about fragile X, to the lows of not sharing it with my family, back up to the highs of having a photo shoot that worked perfectly for our son’s special needs. The day started at the Festival of the … Continue reading Highs and lows of fragile X